Sasori just joined our forums

[admin]

Sasori

Welcome to our forums.  Please introduce yourself on our forums.

Admin
Stem Cells For Hope

[Sasori]

Hi there everyone! Kaci's Mom told me about this forum. We are currently fundraising to go to the same clinic Kaci went to.  We are in New Zealand (waaaaay down here beside Australia), so we're a bit far away from any action.  Had originally thought we'd go to China, but feel a bit safer knowing the cells used with SRI/Ramirez are sourced and tested in the States.
Our daughter is 20 mths old and has spastic quad CP with secondary Microcephaly, Epilepsy and severe developmental delay and low vision.  However, she is doing much better than predicted, is breastfed, eats 'soft lumpy' food, drinks some thickened liquids, walks if supported under her arms and enjoys water, music and knocking things over.  We are about to start up a website and charity trust to fund Daryl's trip and also to help other families fund alternative therapies for CP (sort of like adamsusserfoundation.org). 

[Kacis Mom]

Hey,
Right on!!!  Good to see you HERE too!!!  Do you have a date planned for your trip yet??  I was also wondering- have you tried Hyperbaric Oxygen Therapy at all???  Kaci's had about 200 hours worth and it DID make some changes.  Talk to you later.
Kristin

[Sasori]

Hiya Kristin
No date as yet, need to see how long it'll take us to raise the money and get visas etc.  But we are hoping to be there before Christmas! Probably a good time of year too, as far as weather goes, hopefully not too hot! It gets pretty chilly here in Dunedin and some of the temperatures I've been seeing over there lately will fry us to a crisp!
What sort of changes did you see with the oxygen? Figured, well, it's another thing with very low risk but lots to gain, so why not eh?
Take care, catch up with you again soon!
J

[Kacis Mom]

I noticed with the HBOT that her fine motor, speech, and oral motor improved.  I really think she made her most improvemment on the first 160 treatments.  After that, I didn't really notice much improvement- but every one is different.  Kaci was about 3 1/2 when we started it.  I kind of think that "repair" on newer brain injuries (like on kids that are young) is more likely because those cells that are damaged in the brain are really just "dormant" and not dead.  The high concentration of oxygen (100%) and the atmospheric pressure (ATA) that is used to get the oxygen to the brain is sometimes just what those cells need.  I'm not saying it's a "cure all" but I've seen a lot of kids it has helped!!!  See www.abilitycamp.com.

Kristin