Hi!!
I wrote to Betty in her china thread already. I have MS, probably secondary progressive after 17years, and am about an EDSS (expanded disability scale) 6; in other words I use a cane all the time and sometimes, like in the mall or an airport I use a chair. The last couple of years I have gone down quite a bit in function whereas for years before I was kind of stable. I can see how this is going now in spite of "the best medical care" and I am actively looking for alternatives to the not so very useful regular pharmaceutical drugs.
I wrote to Cell medicine a company that has some cool videos I found on the web at cellmedicine (dot) com --I am not here to give them a plug just to talk about what I found out for me-- and they said my disease needs mesenchymal stem cells and treatment would be 40 THOUSAND dollars. Wow, what disabled person has money like that!
Well if one treatment would result in some kind of cure well that is worthwhile but I have a feeling it would be a treatment that we with diseases like MS that are ongoing in nature probably will need treatment every 6 months or something like that to clean up any new damage. My darling husband loves me but I would never be happy to ask the family to use every penny we have for a treatment that is not sure, but I am in a dilemma; MY MS is bad enough there are no decent options for me in reglar medicine, nothing that even has a track record that suggest it might be able to help reverse even a little of what has happened. The trouble is there will not be anything left to save before too much longer even if what we could do was to stop it at that point.
I am very anxiously awaiting the stories this forum might generate. I guess I will buy a lottery ticket from time to time and be sure and enter the publishers clearing house too! Maybe that will eliminate the money problem!
Hey, MS is a one in a thousand chance, maybe I'll get lucky again!
carpathia
